Tight-laced

joined 2 years ago
[–] Tight-laced@kbin.social 8 points 2 years ago (2 children)

My husband has ME/CFS, like the Physics Girl. It's an absolutely devastating illness. He was a very active 35 when he was told there's no cure, not even a treatment, and that pain/fatigue was his life now for the rest of his days.

We've been around this long enough to see promising drug/cure/treatment/diagnostic tests come and disappear, month after month, year after year. The influx of funding/awareness linked to Long Covid is incredibly welcome, but many instances are repeats of previous ME/CFS research, so it holds up previous findings but doesnt drive anything forward. There's not been any real progress in the last 2 years, and the funding/focus is waning. I may be jaded, but hopes are low. I also sincerely hope I'm wrong.

[–] Tight-laced@kbin.social 5 points 2 years ago

Oooh, that's fascinating

[–] Tight-laced@kbin.social 4 points 2 years ago (1 children)

Dark

Or Peaky Blinders

[–] Tight-laced@kbin.social 20 points 2 years ago* (last edited 2 years ago)

Makes you wonder why the staff unionised in the first place. Sounds like they weren't being valued from the offset.

[–] Tight-laced@kbin.social 1 points 2 years ago

Banana and Salad Cream sandwiches.

The Salad Cream adds a nice tangyness, you can tell yourself the banana makes it healthy, and you've got a proper student sandwich.

Works surprisingly well.

[–] Tight-laced@kbin.social 3 points 2 years ago

Thats quite the photo.

Though the article does point out that they were nearly swallowed.

[–] Tight-laced@kbin.social 2 points 2 years ago

I'm conflicted.

Sad that all that development and fossil fuel usage will come to a rather nice and remote section of Scotland.

But would be cool to take my daughter to see a rocket launch.

[–] Tight-laced@kbin.social 1 points 2 years ago
  1. Buy a big mansion/estate somewhere quiet in Scotland
  2. Hire staff and carers
  3. Fill mansion with the CFS/ME sufferers who are in awful situations and give them somewhere safe/peaceful to exist.
  4. Rinse and repeat to how many such facilities that much money can support.
  5. Leave enough in trust to keep the facilities open.
[–] Tight-laced@kbin.social 1 points 2 years ago

Just subbed/posted

[–] Tight-laced@kbin.social 6 points 2 years ago (2 children)

Replaced by whom?

I get that some people will step up into being Mods, but modding is hard and thankless work - I've done it a few times over the years.

There's always subs crying out for new Mods, so you'll end up scraping the barrel for Mods, then the quality will go down, people will get pissed off. With thousands of Subs suddenly needing modding, there's simply not enough volunteers to go around.

One of Reddits unsung resources was its army of Mods keeping the content of some quality (define that as you will). Reddit really is cutting its nose off right now.

[–] Tight-laced@kbin.social 4 points 2 years ago

Duolingo or read a book

[–] Tight-laced@kbin.social 5 points 2 years ago

Best news I've had all day.

Happy to see LJDawson rising from the Reddit shitshow.

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