Oooh, that's fascinating
Tight-laced
joined 2 years ago
- Buy a big mansion/estate somewhere quiet in Scotland
- Hire staff and carers
- Fill mansion with the CFS/ME sufferers who are in awful situations and give them somewhere safe/peaceful to exist.
- Rinse and repeat to how many such facilities that much money can support.
- Leave enough in trust to keep the facilities open.
I really like it here. However, almost 90% of my feed is either posts about Reddit, or Lemmy/kbin meta analysis. We need actual content and communities over here!
Replaced by whom?
I get that some people will step up into being Mods, but modding is hard and thankless work - I've done it a few times over the years.
There's always subs crying out for new Mods, so you'll end up scraping the barrel for Mods, then the quality will go down, people will get pissed off. With thousands of Subs suddenly needing modding, there's simply not enough volunteers to go around.
One of Reddits unsung resources was its army of Mods keeping the content of some quality (define that as you will). Reddit really is cutting its nose off right now.
My husband has ME/CFS, like the Physics Girl. It's an absolutely devastating illness. He was a very active 35 when he was told there's no cure, not even a treatment, and that pain/fatigue was his life now for the rest of his days.
We've been around this long enough to see promising drug/cure/treatment/diagnostic tests come and disappear, month after month, year after year. The influx of funding/awareness linked to Long Covid is incredibly welcome, but many instances are repeats of previous ME/CFS research, so it holds up previous findings but doesnt drive anything forward. There's not been any real progress in the last 2 years, and the funding/focus is waning. I may be jaded, but hopes are low. I also sincerely hope I'm wrong.