Talonflame

joined 2 months ago
[–] [email protected] 8 points 1 month ago (1 children)

Was about to say this too. Can't tell a difference between most games made in 2013 vs 2023.

[–] [email protected] 1 points 1 month ago

It can be frustrating when the world is a lot less accepting. I wish people wouldn't judge so much.

[–] [email protected] 2 points 1 month ago

I wish I knew about pacing sooner. I was under therapy for CFS/ME through telephone sessions and they really helped me especially with pacing. I still have fatigue but I've been better at being able to manage it and realise my limits.

[–] [email protected] 1 points 2 months ago

I've had so many blood tests done when they were trying to figure out what was wrong with me pre POTS/EDS/CFS diagnosis

[–] [email protected] 3 points 2 months ago

You described it so well! That's exactly how I feel. I understand how frustrating it is, especially when it happens in public because people make so many assumptions. Thanks for the kind words ❤️

[–] [email protected] 5 points 2 months ago (3 children)

I have, but doctors don't suspect it. I find my brain fog correlates to episodes of bad circulation/low blood volume, in that it gets worse whenever my blood volume or circulation is low/bad. How did they diagnose you with MCAS and is it easily treatable? Thanks

[–] [email protected] 5 points 2 months ago

It really is. I'm aware of every mistake I'm making but it's like trying to move my fingers rapidly when they're too cold, I can't stop it. Thanks for telling me about the ME community, I'll check it out!

[–] [email protected] 1 points 2 months ago

That's messed up. I can feel your frustrations and I have the same thing too. My heart stopped during a tilt table test and I've passed out several times just from standing. I have to do so much just to maintain a low normal blood pressure.

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