JoBo

joined 2 years ago
[–] [email protected] 9 points 1 year ago

They've been working on this for years, an opportunity to schism gracefully was offered in advance. In the UK, they've allowed individual congregations to decide what can happen in their church building(s), and individual clergy to opt out of officiating.

[–] [email protected] 1 points 1 year ago (1 children)

Advising a parent to torture a child over food is piss poor advice to start with but when the parent has identified possible autism, you realise you know less than nothing and shut the fuck up.

[–] [email protected] 1 points 1 year ago (4 children)

That's a mind-numbingly obvious point which completely ignores the context, which is Pharma justifying their high prices based on the amount they spend on R&D.

The rest of the world gets drugs 2-3x cheaper than the US. Do you imagine they're selling at a loss to everywhere else?

[–] [email protected] 18 points 1 year ago (1 children)

I don't know which jurisdiction you're in but, while it isn't illegal in the UK, you're absolutely right about it being a bad idea and you are correct about the reason. In the event of a crash, it could count against you (in the UK, at least).

[–] [email protected] 3 points 1 year ago

It doesn't cost that much because the company are making a hefty profit, of course. And much more profit off it in the US as per usual, the NHS pays considerably less

The deal struck [in 2021] with Novartis Gene Therapies, secures the drug for NHS patients in England at a substantial confidential discount and paves the way for the National Institute for Health and Care Excellence (NICE) to publish draft guidance recommending treatment with Zolgensma.

The terms of the deal mean that some young children that currently fall outside the NICE recommendation criteria will also be eligible to be considered for treatment by a national multidisciplinary clinical team (MDT) made up of the country’s leading experts in the treatment of SMA.

This means as many as 80 babies and young children could potentially benefit from the life-changing gene therapy a year.

But profiteering aside, the number in the final paragraph is your answer. Up to 80 kids in the UK per year, so up to ~400 in the US, ~500 for the EU. It's not a big market but the cost of drug development doesn't get cheaper just because the number of cases is small, it gets more difficult and more costly. And there's more than one drug company chasing the market.

None of that is a defence of Pharma. But it is inevitable under capitalism. Eat the rich etc etc.

[–] [email protected] 13 points 1 year ago (6 children)

What percentage would be right?

Given that they're using the cost of R&D to justify their prices? A lot more than 21%.

The rest of the world gets much lower prices. That's not out of the goodness of their hearts or the generosity of their wallets, yaknow?

[–] [email protected] 0 points 1 year ago (3 children)

So the fuck what?

[–] [email protected] 3 points 1 year ago (6 children)

What did you think this bit meant?

(He’s likely on the spectrum.)

[–] [email protected] 3 points 1 year ago

I don't disagree with your overall argument but, if they're fined 100% of revenue, that's way less than zero profit (because they've still paid to make, distribute, and recall the things).

Fines should, of course, always be more than the profit made. 3x is a good number.

[–] [email protected] 5 points 1 year ago

I don’t think we’d ever get real safety statistics about companies in China.

China cares a great deal about its exports, and the testing by ANCAP / NCAP / NHSTA is the same in those export markets. Their safety record is not something they can hide. BYD alone is outselling Tesla, so there will be a large volume of real world data coming along shortly. The NHSTA is too gutless to make Musk share the data but they won't be so shy with Chinese brands.

[–] [email protected] 3 points 1 year ago

The event is called the Madrid Open.

[–] [email protected] -3 points 1 year ago

It doesn't matter? This incident was doubly antisemitic, preventing someone from protesting because they are Jewish, and assuming that pro-Palestinian protesters would attack them simply because they were Jewish (ie equating Jewishness with support for Israel and criticism of Israel with antisemitism).

Yes, he's a provocateur. So what? If the copper had said it was because they wanted to keep the two groups of protesters apart (as they routinely do, or are supposed to do), that would be fine. But he decided to be racist about it instead.

 

Reasonably speedy retraction this time, six months from when the problems were first noted on PubPeer (https://pubpeer.com/publications/58E5F4120AB02E9565E3B4DE303EC3). Nine years after publication...

Elisabeth Bik is doing an incredible job. Her toot for this retraction: https://med-mastodon.com/@ElisabethBik/110969401224111581

 

"In their letter to the Home Office, lawyers for the FBU cited media reports which said the Bibby Stockholm had only 222 single-occupancy rooms, but that additional beds had been placed in each in order to to increase the capacity to 506.

"Other reports said that, while the barge had three fire exits, one was not operational because it was at the end of a gangway that had been deemed too steep to be safely used.

"A whistleblower in the local authority is also quoted as telling the Times that fire checks in July had led to serious safety concerns and describing the barge as having the potential to become a "floating Grenfell"."

 

"When a British politician discusses “tough choices”, they invariably reveal whose side they are really on. A tough choice tends to involve emptying the pockets of those with little, or slashing a service ordinary citizens depend on. When Labour committed to retain the Tories’ two-child benefit cap – which drives hundreds of thousands of children into poverty – this was styled as a tough decision. Note, however, that raising taxes on the thriving rich is never described as such, even though such a commitment inevitably triggers coordinated hysteria from Tory politicians, rightwing media outlets and wealthy interests. Refusing to do so is the easy way out: it is the very opposite of a tough decision."

 

I haven't seen a lot about the background to this dispute, so I thought people might be interested. This was published soon after the final, before the forcible kiss became a scandal.

 

“We, the undersigned, are concerned that your current economic programme for government will not transform the economic orthodoxy that has made this country poorer, less cohesive and more unequal than fifteen years ago,” the letter says.

“The maintenance or extension of cuts in the current economic climate will only serve to deepen the poverty and hardship many are already facing.

“We believe it is the duty of an opposition to, where necessary, present an alternative vision for the future and when it comes to economics.”

 

"Angeles Bejar said her strike would last “until a solution is found to the inhumane and bloody hunt they are carrying out against my son with something he does not deserve”, according to EFE news agency."

Won't be too long before there is a solution. He will go..

 

The Streisand Effect is a wonderful thing.

"[T]hese bans target materials written by and about people of color or LGBTQ+ individuals, and even though a 2022 poll found that 70% of parents oppose them, they are continuing at a rapid rate.

"Now the Digital Public Library of America (DPLA) is trying to fight back. It recently launched the Banned Book Program, granting free nationwide access to books restricted in schools or libraries.

"It functions through GPS-based geo-targeting; by typing in your zip code, you are shown the complete list of titles prohibited in your area. Once you download the Palace e-reader app, these books are available to download."

1259
Google search is over (mastodon.social)
submitted 2 years ago* (last edited 2 years ago) by [email protected] to c/[email protected]
 

Via @[email protected]

Right now if you search for "country in Africa that starts with the letter K":

  • DuckDuckGo will link to an alphabetical list of countries in Africa which includes Kenya.

  • Google, as the first hit, links to a ChatGPT transcript where it claims that there are none, and summarizes to say the same.

This is because ChatGPT at some point ingested this popular joke:

"There are no countries in Africa that start with K." "What about Kenya?" "Kenya suck deez nuts?"

 

Liberals ushering in fascism. Again.

"Martin Forde KC, the senior lawyer commissioned by Starmer to investigate the Labour party’s culture, said legal professionals from across the political spectrum had expressed their bewilderment that the Labour leader had not said anything after such personal attacks, even after former Conservative law officers criticised the political rhetoric aimed at “lefty lawyers” on Friday.

"Jacqueline McKenzie has received a torrent of abuse since CCHQ circulated a dossier last week. She told the Guardian people had threatened to drown her “like an asylum seeker” and leave corpses at her property.

"The dossier prompted Nick Vineall KC, the chair of the Bar Council, and Lubna Shuja, the president of the Law Society, to make a rare joint statement condemning the Tories’ behaviour in sending out the document titled “Revealed: senior Labour adviser is lefty lawyer blocking Rwanda deportations”."

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