It looks like on your general information post, you didn't want medical advice, so I do apologize if I'm stepping on toes here, but in another post, you mentioned Trigeminal Neuralgia.
My speech therapist actually got into her line of work because of experiencing face/head/neck neuralgia herself, (on top of being a singer) and so her practice includes manual therapies on top of the more typical speech therapy practice. (apparently its more popular in speech pathology training in the Boston/New England area, so not sure if its as accessible around you)
I suggest looking into manual therapies for treatment, and speech therapists may be a good place to start looking for it. Its made a world of difference for me and my own SLP.
Also, I'm a little curious about Cyclic Vomiting Syndrome. It'd be a bit of a long shot in your case, but if you feel the strong urge to bathe in really, really hot water, tell your specialists- its an obscure one, usually associated with children and gets written off as a form of migraine in adults.
But you're supposed to ask what its desires are. We gotta know if this is AM "Torture humans for Eternity" or Glitchy GLaDOS "Make cake" kinda stuff