A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
ID:
"Me: *stands up really fast*
My entire body:"
Bellow are 12 different engine warning lights that you would have on a car dashboard.
Waiting for all the new warning lights to turn off until only the ten normal warning lights are left.
Accurate 😭
That's called orthostatic hypotension.
Bad enough, it can make you completely lose consciousness, which generally causes bad things when it happens standing.
In mine, and other cases here I'm sure, it's called "a collection of chronic illnesses that cause an enormous amount of pain and other symptoms, that flare up every time you move", but that's good to know anyway, thanks!
Not only. It’s called Orthostatic Intolerance.
Which can be a bunch of things, so only a subset of cases include hypotension.
See: Post-Orthostatic Tatychardia Syndrome (POTS) for example.
I'm pretty sure POTS stands for Postural Orthostatic Tachycardia Syndrome.
Yep sorry I always mix up the acronym.
Post-orthostatic (after standing up) vs Postural Orthostatic (when standing up in an upright posture) sometimes get mixed in my foggy brain.
my Gen-X ass every time I move thanks to 40+ years of skateboarding, surfing, snowboarding, and all around jackass worthy antics
Rugby and combat sports (judo, wrestling, muay thai, mma) did a real number on my joints.
I think I can directly attribute to scrums my enduring neck pains
I have at least two dents in my skull due to bashing my head after a "get up/lights out" event.
Fancy!
Sorry, in all seriousness that really sucks, sending you a friendly internet hug.
Thanks c:
It was kinda annoying but I got real good at sitting in a split second.
I naturally have a very low blood pressure which are compounded by eating disorders and some medication I used to take. I switched meds and it's almost in the past now \o
I have some similar issues, so I can relate, except for the sitting (or standing) fast, since my joints just won't let me 😭
Great that changing meds helped so noticeably!
Oof. Joints are like teeth. You value them when you lose them.
Mine have been pretty much fucked since birth, so I always knew they'd eventually completely betray me lol 😭
DANGER: Ball to the face
🤣🤣🤣
I was actually trying to think up a similar list but was too tired, thank you so much, these are brilliant! 😂
Is your blood pressure ok?
the bottom right indicator light means youre hungry or you ate something bad. not sure what the other symbols mean though
Me waking up for the 40th time during the night because my toddler has RSV