ME/CFS

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A community for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS). ME

Since Lemmy is small, this community also serves as a hub for common comorbidities of ME/CFS. Long COVID (Post COVID), POTS (Postural Orthostatic Tachycardia Syndrome), OI (orthostatic intolerance), MCAS (mast cell activation syndrome), and more!

For those who want an even more general community, check out [email protected]

Also please DM me I need to add some mods!

Rules: Instance Rules, No Ableism + No quackery or denialism. Empathy first, is a must to participate. No unsolicited advice.

founded 9 months ago

MODERATORS

[email protected]

My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. - The Sick Times (thesicktimes.org)

submitted 6 months ago by [email protected] to c/[email protected]

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[–] [email protected] 6 points 6 months ago (1 children)

The title would really benefit from not using the abbreviation ME (myalgic encephalomyelitis).

[–] [email protected] 3 points 6 months ago (1 children)

Fair. But I shared it to a community for patients and caregivers.

[–] [email protected] 2 points 6 months ago (1 children)

Also fair. But it's gonna show up for plenty outside the community as well. Don't know if this is app specific but mine basically functions as /r/all on Reddit. Just pulls posts from everywhere.

[–] [email protected] 2 points 6 months ago

On most apps you can see “all” but also have a feed for your subscribed communities.