this post was submitted on 28 Jun 2025
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Big day today.
Ol' girl is going back home after her 3.5 week stay in hospital. Was only supposed to be 3-5 days.
After seeing her everyday, all I can say is that she really shouldn't be (not in my control). Seeing her last night shook me a bit. Basically she's been refusing 1/2+ the food when there and also refusing supplements (like ensure, resource etc).
Problem is after her head strike a year ago she had a TBI which has caused what they call non amnestic MCI which is a fancy way of saying impaired mind but memory still there. Problem is the only way to slow it down is food and excersise, both of which are not going to be easy.
So taking off work for a bit heading over to p's to see if this will work. I'm not fazed by doing most of the stuff for them (cooking / cleaning / washing etc), really doesn't take much time. Ol' boy will get a cleaner in probably soon.
What I'm mainly worried about is that shift in personality over the last 3 weeks.
For example last night she asked me to turn the light down because she wanted to watch TV. So I did. She said 'that's great', goes around to the other side of the bed and snaps at me 'why is it so dark in here!'. That is not her.
I'm hoping getting some food in her after basically being on a hunger strike will ease that sort of thing up, but if it doesn't then we're in for a ride.
Guess we'll find out.
Thank you all reading this stuff. Not exactly light and airy.
I’m sorry to hear :(
I wonder if some kind of home support package might come in a bit sooner. But also I know there are many things not in your control and post-release care isn’t always great
Thankyou. Definitely looking at home support packages. Definitely looking at the speech path, physio and OT stuff.
Also I hope I’m not overstepping but I would really suggest some supports for you. Not kidding.
Caregiving (which is what you’re doing) can be incredibly difficult and it can have a severe lasting effect on your physical and mental health.
Particularly for informal care which doesn’t have built in protections, supports, or breaks for the person doing the care. Particularly if it’s someone you’re close to. Particularly if everyone else is stepping back and putting the onus on you to manage everything.
Don’t do this alone.
Definitely not overstepping. Reaaly thankful for the advice. Honestly atm I'm open to all of it and really appreciative of everyone here and their thoughts.