this post was submitted on 12 Jun 2025
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 1 year ago
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Alt Text:

Disabled fantasy: Being able to sit in the room with all the doctors who ever asked if you were maybe just making your symptoms up...while they experience your symptoms. And ask them if they're making them up

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[–] [email protected] 5 points 1 month ago (7 children)

As someone with chronic fatigue due to long covid i can relate to this hard. I only had to wait 2 years to start with some experimental meds tho so not all is bad.

[–] [email protected] 7 points 1 month ago (2 children)

There's experimental meds for fatigue due to long covid? Would you feel comfortable sharing wahr this medication is? I sincerely hope that those meds work for u!!! Fatigue is... tiring (ba-dumz). But honestly, I think fatigue is such an underrated symptom that so many people don't understand...

[–] [email protected] 5 points 1 month ago* (last edited 1 month ago) (1 children)

The experimental meds are basically anything they gave someone for another reason which also seemed to have a positive effect on their daily energy levels.

So far I've tried: low dose naltrexon, mestinon and low dose aripiprazole. The first two had only negative effects while the last gives me a few more hours that I'm awake per day. From sleeping 20 hours in the worst case to about 12-16, I still can't do shit but at least I'm awake.

[–] [email protected] 1 points 1 month ago

Thank you very much! Glad to hear that one of them could give you at least some relief, hope that your baseline improves further and that you got something nice to spend your time awake

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